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It started with a tip. Elderly residents of Ontario nursing homes were being routinely neglected and abused in the facilities that were supposed to care for them in their final years.

In interviews, elderly advocates, families and nursing home workers repeatedly told of terrible living conditions, physical neglect and painful premature deaths. The stories were tragic but the families were not prepared to go on the record with their experiences, fearing a backlash from the homes where their parents lived.

But the problem, if true, was much bigger than a few anecdotal stories. The best way to tackle it was through a series of Freedom of Information requests, using the provincial government's own data to determine the extent of the system's breakdown.

After discussing this with my colleague, investigative reporter Kevin Donovan (who later became the project's editor and CAR analyst) I made several requests of the ministry, which were eventually returned with the price tag of about $6,000. We are currently appealing these costs, based on the fact that the information highlighted a serious public health and safety issue.

Fortunately, the freedom of information officer assigned to my request was quite helpful. He pulled together a list of nursing home data that was being kept by the ministry, and let me know the different fields of information each database held.

I decided to go after two different sources of information. The first was a complaints database. It gave details of complaints that were filed by families with the ministry, the name of the home, along with the dates that the complaint was filed and investigated.

The second was a series of abuse reports, filed by the nursing homes. These gave a detailed account of the type of abuse, often at the hands of other residents, along with the home's response.

It took nine months for the requests to come in. It took many more weeks before the information could be built into databases.

While waiting for the FOI requests to come in, I built a third database using more than 400 nursing home inspection reports obtained from a source.

It took over six weeks to create this database.

When all three databases were ready, they held more than 20,000 records. Kevin developed a way to rate the homes using the three streams of data.

Each stream of data were put first into Excel, then imported into Access so Donovan could analyze the information and compare it to the other streams of data. Then the data were analyzed by home, by ministry region, and by type of problem.

This led to the conclusions in the stories: that seniors in as many as four out of five Ontario nursing homes were living in neglect.

Using the conclusions of the data, we were then able to focus on key issues such as neglect, abuse, and the homes that typically had the most problems. One large chain, Central Park Lodges, was shown to have serious problems.

The complaints database gave another invaluable piece of information. Buried within the 7,500 complaints was one line "Resident hospitalized for an ulcer - police investigated."

This led to the story of Natalie Babineau, 93, who died from an untreated, gangrenous bedsore in a Central Park Lodge home. Natalie's story ran as a three-day narrative leading into the series.

We decided early on that we would give all of the homes and associations representing the homes ample time to respond to the conclusions. Central Park Lodge, which faced a fair bit of scrutiny. We were very straight with the CPL about what the stories would say. Central Park, and all other homes mentioned, were presented with the findings before the series ran. Some admitted problems and said they would be corrected. Central Park repeatedly stated that it was trying to its best to deliver quality care, but did admit to a few issues it was trying to correct.

Kevin and I presented the findings to the ministry and the long-term care association that represents the mostly for-profit homes. We gave them time to think about the conclusions and to respond.

The meetings actually resulted in lengthy interviews in which admissions were made which actually strengthened the story.

The stories were published over a period of 11 days last December. The day after the publication of the main news story, Shocking neglect of elderly, new Ontario health minister George Smitherman said he would lead a revolution in nursing-home care.

The following month, he announced surprised annual inspections of nursing Homes, a flaw pointed out in The Star series. And in early May, Smitherman announced a series of changes brought on by the series: $191 million a year to pay for 2,000 more staff; ensuring that residents get two baths a week instead of one; and giving residents access to a full-time nurse. As well, Smitherman announced a package of significant legislative reform, to be debated at Queens Park this fall, which he said will create rigorous enforcement standards for nursing homes.

Bitter End
Toronto Star Nursing Home Investigation
CCN Matthews/CAJ Computer-Assisted Reporting (CAR)

By
Moira Welsh
and
Kevin Donovan



 

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